Effective, equitable, and efficient sharing of individual level data: Recommendations, solutions, and ways forward
This webinar, organised by the coalition’s Data Sharing Working Group, aims to share initiatives to promote effective, equitable, and efficient data sharing; and to share experiences of overcoming barriers related to data sharing in low- and middle-income countries. Findings from the working group’s WHO funded project focusing on solutions rather than challenges will be reported.
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Agenda
Welcome and introduction – Dr Sharon Kaur, University of Malaya, Malaysia
Introduction to WHO funded projects and Data Sharing Working Group – Prof. Phaik Yeong Cheah, MORU, Thailand
Broad Consent for Future Use: A qualitative study of ERC members’ attitudes towards data and sample sharing in Colombia – Dr Maria Consuelo Miranda Montoya, Universidad Industrial de Santander, Colombia
Accelerating science in public health emergencies: Data sharing solutions for international collaboration – Laura Merson, Infectious Diseases Data Observatory (IDDO), UK
Data sharing information requirements in ICTRP registries: what have we learned – Dr Duduzile Ndwandwe, South African Medical Research Council, South Africa
Q&A and closing remarks – Robert Terry, Special Programme for Research and Training in Tropical Diseases (TDR), Switzerland